Wednesday, September 5, 2012

"Blood test for Down's 'could save 300 babies' lives a year'"

First of all you have to read this article so you know what I'm going to be talking about.

"Blood test for Down's 'could save 300 babies' lives a year'"

There are two lines that stand out from this article... the Title above and  "It therefore has the potential to all  but eradicate Down’s syndrome, which is caused by an extra copy of chromosome 21, and affects about 750 babies a year." First off I'm not sure how telling people to terminate their baby will "save lives". Second I'm not sure the way to "eradicate Down syndrome" is to tell people the best decision at 10-12 weeks pregnant is to terminate. It's articles like this that scare people...People think people "suffer" from Down syndrome... I look at my daughter every day and she doesn't look like she is "suffering" one bit! I keep reading these articles on how they can now provide a safer test to diagnose chromosomal abnormalities. And they keep saying how it will "help" people terminate earlier, before they feel that connection to their baby... I'm not sure about you, but I feel that connection the moment I'm told I'm pregnant! I want to see the article that says "New Test Will help you prepare and educate before baby is born" (or something like that).... As most people know I found out when I was16 weeks pregnant that out Emma had Down syndrome. Did it scare me?... yes! Why?... Mostly because I was uninformed about what Down syndrome was. I only knew what the genetic counselor told me and of course what I "thought to be true"... Once I did my own research I wasn't as scared. I say not as scared, because I'm still scared... not of Down syndrome, but of what people perceive Down syndrome to be and how they will treat my daughter because of it.

I could go on and on about this, but it will probably just sound like I'm rambling... Bottom line I think is, we need to educate people on what Down syndrome is, not tell them they are "saving thier babys life" by terminating. It is not the end of the world. Anyone can be born w/ medical complications or have trouble learning. It doesn't take an extra chromosome to make that happen (so you know there are children with Down syndrome born with NO health concerns).

I'm so glad no one convince  me to "save" my daughter's life by terminating her!


  1. I wish the "counseling" the geneticist give before the test was real counseling up to date info on DS..I would hardly call it informing people,it's more like scaring you towards making an ill informed choice that I think most wouldn't make if they had real information.